18 years old with angiomyolipoma

I am only 18 year old and today I was diagnosed with this ''angiomyolipoma kidney'' . It's on my left Kidney and my GP said that it was quite large and I would be seeing a specialist in Feb 2013, however I am concerned that my doctor did not seem to know much about the condition. I don't really know who to talk to about the condition and was wondering if anybody had gone through anything like this...click here to continue

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